If you live in the UK and have MS, then you can (and should!) sign up to the MS Register. The MS Register is a ground-breaking study designed to increase our understanding of living with MS in the UK. When you sign up you will be asked to complete a series of questionnaires designed to help researchers understand more about the realities of living with MS including physical and mental symptoms and wellbeing. Then, every 6 months you will be invited to complete the same set of questions to monitor and gather data on the progression and management of your MS. Data captured by the UK MS Register has been used by researchers within Swansea University, across the UK and even in Europe to answer important questions about living with MS in the UK. Participation is completely voluntary, but I feel that taking part is extremely important for giving researchers the data and insights they need in order to develop a cure for MS and also for health bodies when making decisions about services and treatments that should be made available to those people living with MS.
You can find out more and register here: https://ukmsregister.org
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