Yes, I Have MS Clubhouse Community

Come join the Yes, I Have MS Clubhouse Community! Over the last few months I have been running weekly talks for the MS community on the Clubhouse app which is an audio only social media platform. Every Tuesday at 7pm GMT I host a room which has a weekly topic related to living well with MS. We’ve discussed diagnosis, dating, depression, ambitions and achievements and so many other topics in between! The Yes, I Have MS Club is a safe space for members of the MS community and their friends and family to share experiences, ask questions and support each other wherever we are on our journey.

It has been such an incredible experience to connect with people from all over the world. My first talk started with having a conversation with the inspiring Laura Cariello who is based in New York and does Crossfit and takes part in triathlons! It then developed over the following few weeks to include people from the Netherlands, Germany, UAE, Saudi Arabia, Egypt and more!  Running these MS Clubhouse talks is a huge step for me on my MS journey. From not wanting to talk to anyone with MS when I was first diagnosed, I am now connected with so many people from all over the world who understand what I am going through and who I can support on their journeys too. 

I realised how important running the Clubhouse room is when during the third talk that I ran, a girl from Egypt joined who had been diagnosed only 6 weeks earlier. She said that she was there because she wanted to find out if her life was over and what having MS actually means, as her neurologist hadn’t really explained anything to her. Reassuring people that having MS doesn’t mean that your life is over is what inspired me to write this blog and run the Clubhouse talks. Hearing her say that, brought it home to me that it is important to host these talks because I would have loved to have had a space like this when I was first diagnosed too. There are also other members of the MS community running clubs with different focuses such as Multiple Sclerosis Mamas, MS Thrivers and MS Warriors Living Well.

Unfortunately, the Clubhouse app is currently only available in iPhones and you need to be invited by a current member. So, if you are interested in joining, please just drop me an email with your telephone number and I can send you an invite. I know that this isn’t the most inclusive way of running the talks, but there currently isn’t any other app to connect via audio available to a wide audience. If you don’t have an iPhone, sign up to my newsletter and I’ll let you know as soon as it’s available on Android too.  Finally, I now have a Yes, I Have MS Club that you can join on Clubhouse and you will get notified whenever a room begins. Just join Clubhouse and search for ‘Yes I Have MS!’.

I really hope you can join one of the talks and please spread the word to the MS Community that these clubs exist and these talks are happening as they are such a great way of connecting with the MS community!